Mahsa Shabani is Associate Professor in Health Privacy Law and Innovation. Prior to joining UvA, she was an assistant professor and co-director of Metamedica Center at Ghent University. Her research focus is on personal data protection, health privacy, data sharing, and data-driven biomedical research ethics, law and policy. She has extensively published her work in scientific journals with a broad readership in the fields of data protection, medical law, bioethics, genomics and bioinformatics. Previously, she was visiting scholar at the Center of Genomics and Policy at McGill University, the Center for Health, Law and Emerging Technologies (HeLEX) at University of Oxford, and the Columbia CEER at Columbia University Medical Center. Currently, she is a member of the Ethics advisory broad of various European Commission (EC) funded projects. She is also a selected member of the Scientific Committee of the International Rare Diseases Research Consortium, European Society of Human Genetics (member of the SPC) and The Joint Action for the European Health Data Space. She is currently (co-)PI of projects PROPHET ( Horizon Europe), Crowd-scourced genetic data for research purposes (FWO), fairness in secondary uses of health data (BOF), and Smart glasses in primary care (TETRA).
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